Share Your Story: Sandra’s Diagnosis
On May 10, 2010 I was climbing the stairs after a long Mother’s Day and heading upstairs to bed. As I climbed the stairs, my heart started winding up and my breathing got much labored.
When I finally got to the landing by my bedroom, my heart got faster and kept beating faster and was not rewinding or slowing down. I got very afraid, grabbed my jacket and drove myself down to the bottom of the hill to the William Backus Hospital. I just told my husband and my kids, I had to go somewhere. I did not want to worry them.
9 Months before this happened, I was having the following symptoms before being diagnosed with anything:
- I could hear my heartbeat in my head like a mantra. (Scary)
- I lost my appetite.
- My fingers and toes were getting numb whenever it got cold. Even today the toes are hard to warm up.
- My stomach, although empty because I didn’t want to eat, got bloated and uncomfortable. But, my clothes started getting loose.
- I got tremendous pain in my legs, thighs, knees and pelvis. The severe pain in my hips made walking excruciating. I pushed through the pain because I didn’t want to lose my job. My job required a lot of walking (Security Officer/Casino).
I went to a physician, who really could not care much, because he was about to retire. He did blood work on me and never called me back.
Three weeks later, it was Mother’s Day and after going to work for almost a year, barely being able to climb stairs or do any kind of activities without the fatigue making me want to fall over, I went home and fell over.
Each day leading up to this, I made it through my 0830-1630 work day, came home breathing hard, barely able to get out of my car because of the pain and went directly to bed. The only comfort I felt was being in my bed where I did not have to move or do anything.
My kids suffered because of what I was going through, but I didn’t have the energy to do more than my body would allow. Sometimes it felt like I slept for days. Food wasn’t even thought of. I felt like I was dying.