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Lupus Brain Fog: What Can You Do?

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“Wait… What was I doing here?” Between 20% and 60% of lupus warriors battle lupus brain fog.

If you are battling lupus and find yourself feeling confused, fatigued, or forgetful you are not alone. Perhaps up to half of all Lupus Warriors experience a unique feeling of mental fogginess. These symptoms are collectively known as “cognitive dysfunction.” They can be very frustrating and may cause challenges in work and relationships.

It is import to identify if you or a loved one are experiencing lupus brain fog so you can know what to expect and create a plan to cope with the issue.

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What can I do to tackle lupus brain fog?

Engage Your Care Team    

If there is one thing that we know about lupus, it is that it affects people differently. While there are medications that target brain fog, it could take time for you and your doctor to find the strategy or dose that works for you. Sometimes these medications will target treating the underlying lupus and other times it will target an associated problem such as depression or anxiety.

Make sure to partner with your doctor to get it right. That means being honest with your care team, tracking your symptoms, and taking your medications. Having a good rapport with your physicians and making sure they know your objectives and concerns is vital to battling lupus.

Workout Your Mind

Challenging your mind can help keep your mental health at its peak. Fortunately, it has never been easier or more fun to “train your brain.” There are hundreds of apps and online games that you can play to give yourself a cognitive challenge, from simple puzzles to more complicated mental agility tests. Rather not spend more time in front of a screen? Try to get into the habit of doing a Sudoku or your paper’s crossword.

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Use Reminders and Apps

If you are experiencing lupus brain fog, you can use your smartphone as a powerful coping tool. You can use it to set alarm reminders, create lists, text someone your plans so they can help you remember, and take lots of notes. Of course, you can always go the less digital route and make lots of sticky notes.

Build the Right Emotional Environment

Regardless of what you do to tackle lupus brain fog, you should make sure you have a supportive environment both at home and work. While it can be easy to get frustrated when friends or family don’t understand, you can try forgiving them. You can also try forgiving yourself by reminding yourself, it’s not your fault.

Comments (10)

10 thoughts on “Lupus Brain Fog: What Can You Do?

  1. I try to put things back in there regular place immediately after using them because if I don’t frequently I never find it or don’t find it until I no longer need it or have replaced it.

  2. I find myself unable to call the word I’m looking for to describe something. It can be something simple and in a conversation I will forget several common words that I would normally just automatically call to memory on any other given day.

  3. Feel very alone with my brain fog,;
    I was diagnosed an undiagnosed
    Now have breathing problems seeing a second cardiologist Friday, fatigued a lot just need to ignore the fatigue and go outside Sometimes. Today I feel wiped out, but will try as not moving my body is not good at all.

  4. I feel like I’m going crazy sometimes. I forget a words meaning, forget who people are, forget what I’m supposed to be doing. I feel so sorry for my family…

  5. Before I was diagnosed with Lupus, I had a family doctor that loved to prescribe Prednisone for any time I’d go see him. I recall telling him that I loved the Prednisone because it always cleared my thinking. I have felt like I’ve been in a fog for years.
    Then after being diagnosed with Lupus, I began to realize the insidious nature of what it was doing to me.
    But lately, it’s been getting worse, not better. I’ve been taking my medications, but I’m definitely going to have to talk to my doctor. It’s scary because this is beginning to affect my work.

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